Sunday, April 22, 2012

What does Transfer mean?

Transfer in the world of special needs orphans, most of the time means the worst. It means Life or Death sometimes. It means that their chance of adoption sometimes is dashed. Most orphans get transfered to these Mental Institutions around 4-6 yrs old, sadly this is real & I believe we need to SPEAK OUT FOR THESE LOST & LONELY ORPHANS. Some of you may think I am only 1 person how can I help? If I had not stepped out of my shell begging on my knees raising funds for Mackenzie, or Quinton, or any of the other orphans I may have been a small part of they might still be in orphanages or institutions. I know I may only be just 1 but to that 1 or 2 or 3 or 100 I know I made a difference to them.
Meet Keegan



Keegan is only 1 years old, & just reccently found out he is being transfered if not adopted soon. Why? His orphanage, is closing down. He is the only one right now listed for adoption. Another sad fact, this is a orphanage where I have seen many kids come home from thrive including my buddy Quinton. This is what Reeces Rainbow has to say about him:
Brand new baby boy! It's not often we get to list one so young! Isn't he a little doll!?
He has Down syndrome and a heart defect – a defect of the chamber divider, but surgery is not recommended. He also has issues with his eyes crossing.

Please I am begging you like never before to spread the word about this boy! He needs a family & be home next year for his 2nd Birthday just like Quinton! Are you his forever family? contact Reeces Rainbow for more information.

Wednesday, April 18, 2012

Thoughts on being a Special Needs Sibling

First of all welcome if your joining in from the blogging party! Please feel free to read my past posts to see how I got here. For those that are new, if you did not know I have a sister who has Down Syndrome, Sarah who is 24 years old. I would like to start with though she may have an extra chromosome, look different, talk slower she is still MY SISTER & is NORMAL. She does the same stuff you & I do, dancing, singing to disney movies, playing disney trivia, & many more. Growing up it was hard in the tough points cause none of my friends had that in common with me & it was hard to figure out what I was feeling. Having no friends with a sibling with special needs made me feel alone frankly. Not til I went to Camp Barnabas, did I truely feel like I was not alone in this Journey of being a sibling. My struggles were nothing compared to some of the other siblings I met at camp but yet some were still the same. That support that came from just a week at camp, being just a normal pre-teen/teen with no one staring at you or your sibling & being able to share the Good, & the Bad times in confidence. I want people to know even though we have our share of struggles that SIBLINGS WHO HAVE A SIB WITH DOWN SYNDROME DO NOT FEEL BURDENED AT ALL! Reccently they did a study on siblings of people with Down Syndrome, & you know what they found out? That most siblings had a POSITIVE response. So to those parents who may think their child will be a burden to the child without special needs, don't assume that! The sweetest thing my Sarah said reccently to my sister Rebekah who is expecting, "Will the baby have Down Syndrome like me?" Sarah does fully understand what down syndrome is & she accepts who God created her to be. You know what else? If my sister had a child with Down Syndrome she would take on that special gift as she knows what a joy Sarah has been in our lifes & our family would welcome that new child just like any other new member in our family!
Some things that bug me still are STARES & in correct terms on People First Language. I do know that some of us who know people with ds love seeing others in the store, etc. but I try not to stare as I don't want them to think the wrong impression. Another thing that bugs me is the R word, yeah I know some of us use it to joke about ourselves but to me its offensive. How would you feel if you were called that?
Being a sibling has taught me so much about others but to me they are just like anyone else. I hope to adopt a child with down syndrome or other special needs but if I had a child with ds I would say "Bring it on!" as my brother shares in our video we made about being a sibling back in December for a contest. If anyone has any Questions about being a sibling feel free to ask in the comments & I will try my best to answer!

Sunday, April 15, 2012

Normal what is that?

Normal what is that anyway? Normal is a setting on the washing machine. Who is normal? I am certainly not normal, I may not have special needs that are clearly visible but if I did would that defy who I am? Would I be considered abnormal? Would I be tossed asside being stuck in a crib 24 hrs a day. What about minor disabilites like hand deformities or ones that need medication? I take Magneisum everyday cause I was born with a VERY RARE thing that makes my hands shaky. (sorry I don't know the official name of it) Sometimes I wish I did not have to remember to take it everyday, but then I wonder if I had been born in another country would I be tossed asside just cause of my hands being shaky? My hands luckily do not shake as much as they use to thanks to the medicine & my hands getting stronger. (likely all the knitting I do lol) Sarah just wants to be like anyone else, her Down Syndrome or social phobia does not defy her & why should they? She hardly wants to watch anything having to do with DS as she wants to be NORMAL like anyone else & not have her disability defy her. These kids ALL DESERVE TO HAVE A NORMAL LIFE & WILL SPEND THE REST OF THEIR DAYS IN A INSTITUION IF NOT ADOPTED BY THEIR 16TH BIRTHDAY!! IF YOUR HOMESTUDY APPROVED PRETTY PLEASE CONSIDER ONE OF THESE OLDER KIDS! YES THEY MIGHT BE CHALLENGING BUT AREN'T THEY WORTH IT?
Jared


Stefan


Trina

EDITED NOTE-Sadly since I wrote this post 18 kids Mostly older had to be taken off Reeces Rainbow due to no longer being able to be adopted including Leigh who I had posted. PRETTY PLEASE WITH ALL I ASK IS TO SHARE THESE KIDS WITH ALL YOUR MIGHT! I HATE SEEING OLDER KIDS LISTED THAN HAVE NO HOPE SO PLEASE PLEASE PLEASE SHARE!! THESE KIDS WILL SPEND THE REST OF THEIR DAYS IN A INSTITUION IF NOT ADOPTED ASAP!! Can't adopt them? Then please spread the word as you just never know who you might effect!

Thursday, April 12, 2012

When God tells you something, you do it!

I was planning to write about something I was born with but will save that for later. Last year, a little girl Brandi who had been listed at least since I first found out about Reeces Rainbow became unavailable due to a new law & sadly her special needs did not make the list. I had fallen for her & "Genesis" now going to be named Sarah by her new family but felt I needed to focus on Celine & Cora Lynne since thats why I had started this blog originally. So I was sad for her & another girl who did not make the cut on that list. I had not really thought much about her since she got taken off Reeces Rainbow til my Birthday Feb 4th when with a friend that day we were discussing Zinnia the other girl who my friend had fallen in love with & I mentioned Brandi out of the blue that she also had been not available for adoption. Strangely enough I felt lead to pray for her that night, & to my shocked surprise I found her relisted the next day! She was about to the age where she could qualify for adoption even though her needs were still not on the list. (which I think now are anyway)I can only ask that God was stirring something in my heart to help this precious girl with cerebal palsy. So naturally, I asked to be her Guardian Angel warrior for that reason & the fact that I felt like I needed to focus & advocate for a child without Down Syndrome since not too many notice the "Other Angels" that have various other special needs. God called me to be her warrior for that reason & I followed what he lead me to do! If he is calling you to adopt DO IT, if he is calling you to pray for a child in need of a family DO IT, if he calls you to advocate for a child DO IT. Let God lead the way for whatever he leads you to do! PRAY, ADVOCATE, ADOPT!!! I am praying Brandis family will find her soon, in the meantime I am trying to fundraise for this precious girl that God told me to pray for!

Monday, April 9, 2012

Thank You for your feedback!

I so appreciate all your feedback you have given me! Sadly their is no way to figure out who had been following before/after I changed the blog address & for that sense I regret changing the name but it was time for a new change on this blog effect. But maybe this means for me to find new people for my blog to minister to? I don't know but I am following my heart on what to do. I am glad to know their are still some reading, even if I am not the greatest blogger in the world. If you want to follow along the new address just click unfollow of the old blog address, type the new blog address in the browser line & I believe you can refollow that way.
Right now I am focussing on a Facebook auction for Brandi so if you know of any shops/stores on there that might want to donate anything girly-tutus, bows, shirts, outfits, etc. let me know at singergirl15@yahoo.com
I will gladly advertise websites of any buissness who wishes to donate!
Again thanks for STICKING WITH ME!! I should have an update on total raised for Celine soon from JBF! If you have any suggestions, thoughts, etc please let me know!

Thursday, April 5, 2012

Testing 1.2.3

I am making sure the comments work in general & if my official followers from when this blog was Caring for Celine & Cora Lynne are still here & who is truely reading this blog as its been WAY TOO QUIET AROUND HERE.
Please help me by doing the following:
Name
How did you find my blog?
A little bit about your self
Favorite food
If your a official follower of my blog say I am a Beautiful Butterfly!
Note Rochelle, I know you read so you count as a follower.

And the testing starts now! Lets see how many comments back I can get to see if People are reading! Again Rochelle & Katrina I know you both do.

Tuesday, April 3, 2012

Worth so much more

Why would someone not give her a chance? Yes, her eyes seem daunting but she could be worth so much more in a family. Will someone see past the sadness in her eyes?? Is it because she is almost 6 years old? Is that what scares you from making me part of your family?

Praying she has not been transferred.